Young People With Cancer
A Handbook for Parents

National Institutes of Health
National Cancer Institute

Acknowledgments

Although many people have played a role in the development of this guide, the most important contribution has come from those it is intended to serve- the parents and family members of young cancer patients, the patients themselves, and the caregivers who treat them.

This publication has benefited from the wealth of information provided through the Candlelighters Childhood Cancer Foundation and the parents' groups in its communication system, the review and assistance of professionals who treat young people with cancer, and the insights, review, and openness of young cancer patients and their parents. Although they are too numerous to name, their contributions are grate fully acknowledged.


1. Introduction

2. The Disease

What is a blast?
What happens in leukemia?
Kinds of leukemia in young people
Diagnosis and treatment
What is a solid tumor?
Kinds of solid tumors in young people
Hospitalization
Surgery
Chemotherapy
Chemotherapy and its side effects
Controlling the side effects from chemotherapy
Radiation therapy
Side effects of radiation therapy and controlling them
New treatments
Unconventional methods of cancer treatment
Infections
Activities
Diet
Immunizations
Other medications
Mouth care
Dental care
Bleeding
Transfusions

3. Tips for Clinic Visits and Medical Procedures

Angiograms
Biopsy
Blood studies
Scans or radioisotope studies
Ultrasound studies
Bone marrow aspiration
Computerized tomography
Magnetic resonance imaging
Lumbar puncture
Scans or radioisotope studies
Ultrasound studies

4. Coping With Cancer

Parents initial reactions
Accepting the diagnosis
Telling your child
Age-related concerns of children
Reassuring your child
Telling the brothers and sisters
The parents
The patient
Siblings
Family and friends
Finances
Candlelighters Childhood Cancer Foundation
American Cancer Society
Leukemia Society of America Inc.
Cancer Information Service
PDQ Database
Ronald McDonald Houses
Home Care for the Dying Child

5. Glossary


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