What is CMV?
People with HIV may get CMV disease. This booklet explains what CMV is. It also talks about medicines that can be used to help treat the disease and steps you can take to keep yourself healthy.

CMV is short for cytomegalovirus, the germ that causes CMV disease. Many people have this germ in their bodies and may never get sick from it. Because people with HIV have weakened immune systems, they may not be able to fight off CMV and can become seriously ill.

Symptoms of CMV
CMV disease can damage many parts of the body, including the digestive system and lungs. CMV disease most commonly affects the eyes and can cause blindness if it is not treated.

A blood test can be used to find out if you have CMV in your body. Other tests may be used to make sure your symptoms are caused by CMV. An eye exam can show CMV even before symptoms appear.

CMV may cause some of the symptoms listed in the box below:

Symptoms of CMV eye disease
  • Floating spots before the eyes
  • Hazy vision, as if looking through a screen
  • Blurred or missing areas of vision
Symptoms of CMV digestive disease
  • Diarrhea
  • Loss of appetitecribed (at the right time and in the right amounts). Be sure you know how to take them. Ask your doctor or clinic nurse if you have any questions. Continue to keep your clinic appointments so that your doctor can check you to make sure that the medicine is working.

  • Tell your doctor or clinic nurse about any side effects from your medicine. Medicines used to treat CMV disease can cause fever, diarrhea, nausea, tiredness, or abnormal bruising and bleeding in some people. Your doctor may have to give you another medicine or change the amount that you take to reduce your side effects.
Research: Hope for the Future
Scientists are working to find better drugs to treat and prevent CMV disease. Drugs that may work better and are easier to take than drugs that are now used are being tested in research studies.

You may be able to help test one of these new drugs. If you take part in research, you may help yourself -- and others with HIV.

If you are interested, talk to your doctor or nurse. Or call the numbers below to find out more.

Remember:

  • CMV is a serious disease that can cause blindness and damage to other organs if not treated.

  • Tell your doctor or clinic nurse right away if you have sudden changes in vision or other symptoms of CMV disease.

  • Take your medicine as your doctor prescribed.

  • Be sure to have regular check-ups.
To Find Out More About CMV
Here are some numbers to call to learn more about CMV and how to help yourself:
  • 1-800-342-AIDS
    (1-800-342-2437)

    You can get more information about CMV disease. You can also find out about treatment centers and other help.

  • 1-800-TRIALS-A
    (1-800-874-2572)

    You can find out about testing new drugs. There may be a center near you where you can volunteer for studies that are taking place.

  • 1-800-AIDS-NIH
    (1-800-243-7644)

    Call Monday through Friday from 12:00 p.m. to 3:00 p.m. (Eastern Time) to find out about studies being done at the National Institutes of Health (NIH) Clinical Center.

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