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Mood: caregiver222 Journal Entry: "Today is Saturday August 23, 2008. Inez i..." [Read]
, Mar 05, 2007 12:00AM
He needs to be in a chair for more than a "few hours" a day. You also need to get him in a wheel chair with good soft pneumatic wheels and take him around to experience things. Outside if the weather is nice. At least an hour a day in sunlight. It is difficult if not impossible to be a "friend" to the aides. It is their job to instantly take care of incontinenceBowel incontinence External incontinence devices Incontinence - resources Skin care and incontinence Stress incontinence Urge incontinence Urinary incontinence Urinary incontinence products and there is no exuse for their behing any odor in the room when aides are employed. It goes without saying he should be watching television as muich as possible on a good screen, and maximum use should be made of a "dry-erase board". Don't hesitate to fire aides if they don't perform. Most of them have a "monologue" they get from centralCentral sleep apnea casting about "how much they enjoy their work". You wanty him properly groomed, dressed and washed every day. And not in Pajamas. I went through this with my sweety pie when she was bedridden and could not move. They came up with a thouisand reasons why it was impossible, the clothes woulod get soiled. My answer was "If I come in her at ten A.M. and she isn't properly groomed and dressed you're fired". And she stays groomed and dressed until bedtime.
How well does your father understand language? Check out the website www.youmeworks.com It has nothing to do with strokeHeat emergencies Hemorrhagic stroke Stroke Transient ischemic attack, but is great for helping people overcome discouragement, and I'm sure part of your father's helplessness is his discouragement.
FCA..Family Caregiver Alliance..you can find them on the Web...they take care of you and your Mom. As far as books there are several on Stroke Rehabilitation on Amazon. The most important thing, I think is to try to keep him moving and doing all he can do on his own as much as possible. This is often difficult, as with my mother she does not want to do/ or cannot do anything on her own..she is very apathetci and just wants to be taken care of and pushed around in a wheelchair. Our caregivers, get her up, showered, dressed every day, breakfast, nap and then out somewhere in the car and wheelchair. She only stays home all day when it snows and then she is sitting up in the family room with the TV on. You will always hear that "all strokes are different" this is true as there are so many variables..but I believe recovery depends on 1) the patients willingness to try to recover (with PT etc.). 2) the family participation and caring and 3) the families finances to survive the whole ordeal without putting the patient in a nursing home. Your Dad can make progress, but it is not an easy road by any means.
..but you are not alone. Please conatct Family Caregier Alliance...they are free and very suportive.
Vicki PS I am an only child..no siblings to help.