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Thyroid (Expert Forum)
underlying CFS or fibromalagnia
Answered by
Mark Lupo, M.D. - Thyroid Nodules, Thyroid Cancer, hyperthyroidism, hypothyroidism, Thyroid Ultrasound
Thyroid & Endocrine Center of Florida
Sarasota - FL
Questions in the Thyroid forum are answered by Dr. Mark Lupo. Topics covered include goiter, graves disease, Hashimoto's thyroiditis, hyperthyroid, hypothyroid, thyroid cancers, thyroiditis, and thyroid stimulating hormone (TSH).
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underlying CFS or fibromalagnia
by tina999, Sep 12, 2005 12:00AM
Hey all,
After the below post about chronic pain and the ongoing commentary on adrenal disease, I was wondering if by chance some of us may have had underlying CFS/fibromalagnia issues that were exposed by the the thyroid disease treatment. Low levels of cortisol seem to play some role in those disorders-albeit not well understood.
That would explain why most people are fine but a small percentage develop problems.
Also does anyone have any idea how often drs go past the ACTH stim test in looking for adrenal problems?
The JAMA article I found said that you can pass an ACTH stim test and still be adrenal insufficient-you may fail the more in depth tests. The context was in glucocorticoid withdrawal but all the clinical sympotoms are the same.
any ideas?
After the below post about chronic pain and the ongoing commentary on adrenal disease, I was wondering if by chance some of us may have had underlying CFS/fibromalagnia issues that were exposed by the the thyroid disease treatment. Low levels of cortisol seem to play some role in those disorders-albeit not well understood.
That would explain why most people are fine but a small percentage develop problems.
Also does anyone have any idea how often drs go past the ACTH stim test in looking for adrenal problems?
The JAMA article I found said that you can pass an ACTH stim test and still be adrenal insufficient-you may fail the more in depth tests. The context was in glucocorticoid withdrawal but all the clinical sympotoms are the same.
any ideas?
Doctor's Answer
by Mark Lupo, M.D., Sep 16, 2005 12:00AM
, Sep 16, 2005 12:00AM
The ACTH test you mention for glucocorticoid withdrawal is a different clinical situation (ie, pituitary suppression of ACTH production from long-term steroid treatment) -- this may be better "teased-out" with the low dose ACTH test not the standard test. This does not apply (we think) to primary adrenal insufficiency where the standard ACTH test is very effective at determining who needs lifelong steroid treatment - there are borderline cases where a trial of steroids may be worthwhile.
Thyroid treatment does not bring out fibromyalgia (FM) - FM seems to be more common in thyroid patients and some of the symptoms overlap as you well know with both thyroid and adrenal deficiency. Aggressive treatment of hypothyroidism is important for FM patients.
Thyroid treatment does not bring out fibromyalgia (FM) - FM seems to be more common in thyroid patients and some of the symptoms overlap as you well know with both thyroid and adrenal deficiency. Aggressive treatment of hypothyroidism is important for FM patients.
Mary Shomon, author of that second article described above, was diagnosed FMS/CFS, along with her Hashi's Disease. She has it in remission now according to her book "living well With Autoimmune Disease", which I also highly recommend.
Thanks for your informative posts!
I don't think they are counting our correspondence and posts to eachother as "questions for the Dr.", at least I hope they're not because if they are, the Dr. questions will seldom ever be answered!
Just as I thought all was fantastic I have noticed a new problem cropping up. I have been taking the florinef for a week and I am up to 25 ug of levoxyl for the second day in a row. However every day I have noticed feeling a liitle "yucky" towards the afternoon with achiness in my joints and ligaments and my stomach feels weird. It gets a bit worse everyday but mostly goes away if I go out and run amile or so. So I have been running a mile evryday for the past four or five days. I have gained five pounds back since starting the florinef but I lost almost fifteen going in and out of the ER.
It looks like I may have not escaped the cortisol issue afterall.
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I never got a reply to my email though.....
It would be nice to know why Drmark left. Without knowing, we assume someone offended him or he's on vacation and not answering the 2-questions a day etc....... We are left having to guess. I actually mentioned this senario happening, in a past post I made. I honestly believed this change was coming. I'll not go into why I believe it is happening but will say I'm glad for the help so many people got while it lasted. I believe a weeding out process is now in motion. That's okay, they are not obligated to do this and was really generous of them, these past months.