Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.

Gastroenterology (Expert Forum)

Email this

Idiopathic chronic gastroparesis with idiopathic orthostatic hypotension

This forum is for questions regarding Gastroenterology issues such as Acid Reflux (GERD), Barretts Esophagus, Colitis, Colon/Bowel Disorders, Crohn's Disease, Diverticulitis/Diverticulosis, Digestive Disorders, IBS, Stomach Pain.

Post a Question Back to Forum

MedHelp Member's Question

Idiopathic chronic gastroparesis with idiopathic orthostatic hypotension

by Theresa, Jun 18, 2001 12:00AM

Tags: idiopathic, chronic, gastroparesis, orthostatic, hypotension, digestive, meds, nutrition, pain, procedure, Work

I'm a 21 year old female and about 3 months ago I was diagnosed with idiopathich chronic gastroparesis and then right after that with orthostatic hypotension, followed by intense pain in my mid-back, hips, and legs which my doctor tentatively described as nerve pain that debilitates me, could these all be connected somehow? My doctors all five of them have tried medicine, diets, and physical therapy to try and help me but they didn't work! Now I have a Jejunostomy tube placed in my jejunum to provide about 95% of my nutrition, and Florinef for the hypotension though that doesn't always work, they're still stumped on the pain. The doctors are still looking and running tests, but my insurance doesn't cover the enteral formula and that costs $5,000 per month. Does anyone have any suggestions for resources or information that could help me? I am tired of being bed ridden, I have two children ages 2 and 3 and husband that need their mommy and wife back!

Member Comments

by goofy, Jun 22, 2001 12:00AM

I have gastroparesis, but it is not as servere. I have done some of my research and read that they have a pace maker for the stomach. It will help you move your food without taking any meds. I don't no what the pros and cons are of it, but you can ask your doctor's about it. I hope that this can help alittle.

by monkeygirl, Jun 29, 2001 12:00AM

I am 23 and have had severe idiopathic GP for seven years. I live on a j-tube as well for all nutrition and meds. This is my third j-tube and I spent three weeks in the hospital when this one was placed due to complications. I had to have an open procedure because my intestines were a mess from past surgeries, and a lap procedure to clean up the mess. I have also been on an NJ tube and TPN in the past as well. Please check out my website at www.monkeygirl.atfreeweb.com for more info on my life with a j-tube, GP info, etc and join my support group at www.yahoogroups.com/group/gastroparesis. There are almost 300 members. We are also starting a GP foundation.

Carissa

Back to Forum

Continue discussion

Expert Activity

Salmonella typhimurium outbreak sic...
Jan 07 by Enoch Choi, MD

Can Sleep Apnea Cause Alzheimer's?...
Jan 05 by Steven Y Park, MD

Optimal Health in 2009- Happy New Y...

Dec 31 by Lee Kirksey, MD

Related Expert Forums

Ask a Pharmacist

Colitis

GERD (Acid Reflux)

Related Communities

Celiac (Sprue) Disease

Colon Cancer

Crohn's Disease / Ulcerative Colitis

Gastroenterology

Healthy Cooking

Irritable Bowel Syndrome (IBS)

Kidney Disease & Disorders

Liver Disorders

Ostomy

Pediatric GERD (Reflux)

Related Tags

Explore MedHelp

Communities

Ask a Doctor Forums

See All Ask a Doctor Forums

Tools and Applications

See All Health Trackers

Personal Information

Personal Health Records

Medical Information

Doctors and Partners

Doctors and Medical Experts

Find a Doctor

Medical Partners

Information contained within this site is intended solely for general educational purposes and is not intended nor implied to be a substitute for professional medical advice relative to your specific medical condition or question. Always seek the advice of your physician or other health provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following Terms and Conditions. MedHelp.org subscribes to the HONCode principles of the Health On the Net Foundation. Verify here.

Your Name:
Your Email:
Friend's Email:
Message:

	Enter the code shown:



	Leave a Note Send Message Add as Friend Theresa Member since Nov 1999



	Add as Friend Enoch Choi, MD Male, 44 years Palo Alto - CA Member since Aug 2007 Mood: Enoch Choi, MD back to PAMF UCC clinic Journal Entry: "I'll be chatting about this on KGO810AM r..." [Read]



	Add as Friend Steven Y Park, MD Male, 41 years New York - NY Member since Oct 2008 Journal Entry: "Researchers found that when people with A..." [Read]



	Add as Friend Lee Kirksey, MD Male Philadelphia - PA Member since Apr 2008 Mood: LeeKirksey ...optimistic Journal Entry: "Happy New Year to all of the Medhelp fami..." [Read]



	Add as Friend Gregg D Jacobs, Ph.D. Male Member since Dec 2008 Journal Entry: "Insomnia is defined as insufficient, inad..." [Read]



	Add as Friend Anita Ramsetty, MD Female Member since Oct 2007 Journal Entry: "Dear Friends, I am afraid the time has..." [Read]



	Add as Friend Adam R. Tanase, D.C. Male St. Louis - MO Member since May 2008 Mood: AdamTanase happy to answer your questions. Journal Entry: "I would like to share this news article w..." [Read]



	Leave a Note for Just a note Hugs Thinking of you Thank You Welcome Prayer Feel better Congrats! Happy Holidays Just a quick note to say hi! Add as friend Post It Never Mind 800 character limit exceeded Just a quick note to say hi! You deserve a big bear hug! You're in my thoughts all the time, but especially today. Thank you for everything! Welcome to our community! You are in my thoughts and prayers. Hope you feel better soon! Congratulations! Time for a celebration... Happy Holidays!