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Gastroenterology (Expert Forum)
Mastocytosis - Newly Diagnosed
Answered by
Kevin Pho, MD - Internal Medicine
Kevin, M.D.
Boston - MA
This forum is for questions regarding Gastroenterology issues such as Acid Reflux (GERD), Barretts Esophagus, Colitis, Colon/Bowel Disorders, Crohn's Disease, Diverticulitis/Diverticulosis, Digestive Disorders, IBS, Stomach Pain.
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Mastocytosis - Newly Diagnosed
by Nanlyn, Jul 20, 2005 12:00AM
I am newly diagnosed with cutaneous (and possibly systemic) Mastocytosis. Please please please give me some input on what to expect - I am very upset by this and of course would love some personal experiences with this also. My symptoms are mostly for the cutaneous type and I am hoping that is all it is. How about doctors in the NY area? Have got to find one who would be familiar with this.
Doctor's Answer
by Kevin Pho, MD, Jul 22, 2005 12:00AM
, Jul 22, 2005 12:00AM
Mastocytosis is a disorder of the proliferation of mast cells. The following clinical presentations can be associated with mastocytosis:
* Osteoporosis, fractures, and bone pain
* Anemia and thrombocytopenia
* Hepatosplenomegaly and hypersplenism
* Malabsorption
* Mixed organic brain syndrome
Antihistamines, topical steroids and ultraviolet light therapy have all be used, depending on the severity of disease.
There is unfortunately no cure for systemic mastocytosis. Some have used systemic steroids and immunomodulators with varying success.
The outcome of cutaneous mastocytosis is better than the systemic form. This certainly needs to be discussed with the appropriate specialist.
Unfortunately, I am not from the NY area and cannot give any physician recommendations.
Followup with your personal physician is essential.
This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.
Kevin, M.D.
http://www.straightfromthedoc.com
Bingham. "Mastocytosis". UptoDate, 2005.
* Osteoporosis, fractures, and bone pain
* Anemia and thrombocytopenia
* Hepatosplenomegaly and hypersplenism
* Malabsorption
* Mixed organic brain syndrome
Antihistamines, topical steroids and ultraviolet light therapy have all be used, depending on the severity of disease.
There is unfortunately no cure for systemic mastocytosis. Some have used systemic steroids and immunomodulators with varying success.
The outcome of cutaneous mastocytosis is better than the systemic form. This certainly needs to be discussed with the appropriate specialist.
Unfortunately, I am not from the NY area and cannot give any physician recommendations.
Followup with your personal physician is essential.
This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.
Kevin, M.D.
http://www.straightfromthedoc.com
Bingham. "Mastocytosis". UptoDate, 2005.
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